Table 3.

Themes and subthemes.

Themes	Subthemes
1‐ Groundwork to engage in research, people with lived experience of dementia and EOL care	A‐ Advocacy for engaging experts by experience
	B‐ Consideration for cultural diversities across countries
	C‐ Partnership with organizations
	D‐ The carefully cultivated research team
2‐ Planning for research activities is key	A‐ Thoughtful process of engaging people with lived experiences
	B‐ Consideration for accessibility and accommodation
	C‐ Remunerate for time, knowledge and expertise
3‐ Focus on meaningful engagement	A‐ Involve with purpose and avoid tokenism
	B‐ Garnering trust in the research relationship
	C‐ Strive to create guidance for future research engagement
4‐ Having foresight for practical issues shaping engagement of people with lived experiences	A‐ Awareness for vested interests of diverse people
	B‐ Watch out for the emotional needs and vulnerabilities of partners
	C‐ Mitigate challenges of retention

Abbreviation: EOL, end‐of‐life.