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. 2023 Dec 7;6(1):fcad336. doi: 10.1093/braincomms/fcad336

Table 4.

Participant-reported impactful symptoms

Symptom grouping Symptom reported Number of times symptom is identified as present by participantsa Frequency of symptom reported as occurring in the past 2 weeksb
Over half the days (%) Under half the days (%)
Muscle Weakness/stiffness 56 55 (98) 1 (2)
Fasciculations 8 5 (63) 2 (3)
Mobility Loss of limb function 45 42 (93) 1 (2)
Walking 36 35 (97) -
Oral Speech 34 30 (88) 2 (6)
Swallow/choking 24 22 (92) 2 (8)
Tiredness Fatigue 33 31 (94) 2 (6)
Sleep 14 13 (93) 1 (7)
Pain Pain 26 26 (100) -
Cramps 19 13 (68) 6 (32)
Quality of life Independence in activities of daily living 17 17 (100) -
Quality of life 4 2 (50) 2 (50)
Cognition or behaviour Behaviour change 9 4 (45) 5 (55)
Emotional lability 7 3 (43) 4 (57)
Gastrointestinal Constipation 9 4 (45) 5 (55)
Gastrointestinal (unspecified) 3 2 (67) 1 (33)
Mood Low mood 7 4 (57) 3 (43)
Anxiety 3 2 (67) 1 (33)
Continence Incontinence 2 2 (100) -
Nocturia 1 - -

aNote that due to missing data patterns, frequency of identification may be greater than frequency of occurrence or impact and percentages may not total 100%. bRepresented as a percentage of the number of people who reported this symptom as occurring to them.