Becoming increasingly aware of one’s body image |
Captivated by a disintegrating body |
An uncertain uphill battle against a divergent body and societal ignorance |
Resign to the illness |
Struggle with unfavourable physical symptoms |
Face the impairments of a chronic condition |
Be limited compared to others |
Have strategies for adapting to the condition |
Feel different and singled out |
Experience social exclusion |
Face disbelief and receiving negative comments |
Have shifting experiences of relations and intimacy |
Need emotional support to go on |
Be acknowledged for having problems |
Act as a detective searching for information |
Mull over an insecure future |
Tackle anxiety and worries due to progressive deterioration |