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. 2023 Sep 24;58(1):63–78. doi: 10.1007/s43441-023-00573-7

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© The Author(s) 2023

Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/.

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Fig. 2 — Case study of patient contributions to scientific advice provided by the EMA. The number of patient contributions and how they contributed to various aspects of scientific advice provided by the EMA was assessed as part of a 4-year case study. *In most cases where patient input did not make a change, most of the patients agreed with the development plan set out. EMA, European Medicines Agency