Table 1.

Key lessons about patient representation in crisis governance.

Patient and client organizations have a role to play in resilient crisis management practices, but much now depends on individuals

The input of patient representatives in crisis governance can help to discuss and challenge dominant frames of the crisis.

Diversity of patients’ perspectives can be regarded as an asset but requires work and reflection to be put to use.

Different patient representatives need to connect on and between different decision‐making layers and relate to each other and other actors in the crisis governance system.

Patient representation needs to adapt to ad hoc, emerging, crisis governance structures.