Table 4. Barriers to use of home-monitoring in people living with ILD.

Access	Feedback	knowledge / information
“I want to feel well supported with easy and quick access to specialist ILD professionals that I can speak to if my symptoms or home-monitoring results change. Unless this is available, anxiety can occur more frequently than without home-monitoring” (ID 88 Male) “would appreciate monthly contact to discuss condition” “no one to talk to”(ID 81 Male).	“Would be good if they were reviewed periodically by a specialist’ “I send my spirometry results off and hear nothing as if they have disappeared into a black hole. Some feedback would be welcome.” (ID 87 Male). ‘I don’t contact anyone as they’re not interested’(ID 6 Female) ‘problems I pick up are ignored’ ‘what’s the point in telling them’ (ID 18 Female) ‘In the past medical staff question my results against their readings so I stopped reporting back”(ID 92 Female).	‘I feel very let down around the information side of things. I feel there is plenty of information and support for COPD but very little support in my case for ILD” (ID 85 Female) ‘lack of knowledge about PF by GP’s and receptionists’ (ID 92 Male) ‘HCW reluctant for me to monitor at home’ ‘mocked’ (ID 32 Female).