AIP	acute intermittent porphyria
ALA	aminolevulinic-acid
ALADP	5-aminolevulinic-acid-dehydratase-deficient porphyria
AP(s)	acute porphyria(s)
CEP	congenital erythropoietic porphyria
EPI	European Porphyria Initiative
EPP	erythropoietic protoporphyria
EPNET	European Porphyria Network
EQ-5D-5L	European Quality of Life Questionnaire–5 Dimensions–5 Levels
EUCERD	European Union Committee of Experts on Rare Diseases
FAS	fatigue assessment scale
HCP	hereditary coproporphyria
HDP	(erythropoietic) harderoporphyria
HEP	hepatoerythropoietic porphyria
HIV	humane immunodeficiency virus
IPNET	International Porphyria Network
NAPOS	Norwegian Porphyria Center
PBG	porphobilinogen
PCT	porphyria cutanea tarda
PHQ-9	patient health questionnaire–short version with 9 items
PoReGer	German Porphyria Registry
VP	variegate porphyria
XLEPP	X-linked protoporphyria.