Article title

Source (journal, volume, issue, pages)

Author(s)

Year of publication

Aim(s)

Context

Country (where the study was conducted)

Participants (details, e.g., age/sex and number)

Type of study

Methodology/methods

Questionnaire used

Outcomes

Key findings that relate to the scoping review question/s:

(1)What are the reported sources of the family caregivers’ objective burden (stress related to the caregiving factors and related to the individual with ID) during the transition to adulthood of individuals with ID, for each severity level (mild, moderate, severe, and profound)? How is the caregiver’s objective burden assessed?

(2)What kind of support and resources do the family caregivers report they need to manage the individuals with ID, for each severity level (mild, moderate, severe, and profound), during the transition?

(3)What coping mechanisms do family caregivers commonly use during the transition to adulthood of individuals with ID?

(4)What positive aspects of caregiving help family caregivers during the transition to adulthood of individuals with ID?

(5)What is the family caregivers’ quality of life like (i.e., physical and mental health, perceived subjective burden) during the transition to adulthood of individuals with ID for each severity level (mild, moderate, severe, and profound)?

(6)Are other factors related to caregiving, such as the caregivers’ anxiety levels or expectations about the future independent living of individuals with ID, influencing the caregivers’ quality of life during the transition?