Box 1.

Summary of findings across case studies

Case Study 1:

• Involving clinical and non-clinical team members, researchers and patients in the design was advantageous

• Continuous evaluation of patient needs and expectations would have been beneficial

• Patient adherence appears to be influenced by the participation of clinical teams in the PROM findings

• The burden of PROM completion needs to be balanced with the functional impacts of illness

Case Study 2:

• Patients completed the PROM for a variety of reasons

• Clinical team engagement with PROM findings was a major influence to PROM completion by patients

• Self-management advice and symptom tracking were other motivators for PROM completion

• Completion rates for repeated measures dropped over time

Case Study 3:

• Patients reported greater physician communication and shared decision making when the PROM information was discussed

• PROM completion supports patient engagement in healthcare