Table 1.

Clinical questions that informed the transition to adult care guidelines

Age group	Clinical questions
0–12 years 11 months	1. How can a child’s probable trajectory regarding future adult function and independence be identified? 2. What are barriers and facilitators to participating in emerging adult milestones for children with SB? 3. What are the essential transition planning elements to promote uninterrupted access to care once children with SB need adult care?
13–17 years 11 months	1. How can a child’s probable trajectory regarding future independence be identified? 2. What are barriers and facilitators to participating in emerging adult milestones for children with SB? 3. What are child-centered perceptions of a successful transition experience? 4. What are the systems level barriers to successful transition and strategies that have effectively mitigated them? 5. What are the key transition readiness parameters for patients with SB that can be measured over time? 6. What are the preventative and chronic condition management considerations in the transition age group, ages 14–21? 7. What are the essential transition planning elements to promote uninterrupted access to care once children with SB need adult care?
18 + years	1. What are barriers and facilitators to participating in emerging adult milestones for individuals with SB? 2. What are the preventative and chronic condition management considerations in the transition age group? 3. What are the essential transition planning elements to promote uninterrupted access to care once children with SB need adult care? 4. What are the best strategies to find and engage adult providers?