Table 1.
Document characteristics (n = 65).
| Document characteristic | N | % |
|---|---|---|
| Year of publication | ||
| 2012–2013 | 3 | 5% |
| 2014–2015 | 1 | 2% |
| 2016–2017 | 7 | 11% |
| 2018–2019 | 8 | 12% |
| 2020–2021 | 26 | 40% |
| 2022 | 5 | 8% |
| Undated | 15 | 23% |
| Country of origin | ||
| Canada | 37 | 57% |
| United Kingdom | 17 | 26% |
| United States of America | 8 | 12% |
| Switzerland | 2 | 3% |
| Belgium | 1 | 2% |
| Document source organisation (select all that apply) | ||
| Research network | 29 | 45% |
| Government organisation (i.e., agency established by national or provincial government) | 15 | 23% |
| Health or academic institution | 15 | 23% |
| Charity or foundation | 6 | 9% |
| Nongovernmental organisations | 4 | 6% |
| Government (e.g., Ministry of Health) | 2 | 3% |
| Target audience (select all that apply) | ||
| Researcher | 35 | 54% |
| Patient partner | 27 | 42% |
| Policy maker | 9 | 14% |
| Researcher representative | 5 | 8% |
| Industry member | 3 | 5% |
| Unclear | 15 | 23% |
| Level of policy‐making | ||
| National | 33 | 51% |
| Provincial or state‐specific | 15 | 23% |
| Subprovincial/state | 4 | 6% |
| International | 3 | 5% |
| Unclear | 10 | 15% |
| Document scope | ||
| Focused on patient engagement with a section dedicated to compensation | 30 | 46% |
| Focused on patient partner compensation | 30 | 46% |
| General research guidance with a section on patient partner compensation | 4 | 6% |
| Focused on compensation with a section dedicated to patient partners | 1 | 2% |