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. 2023 Nov 3;41(1):271–291. doi: 10.1007/s12325-023-02704-w

Table 2.

Samples for MRW and POPUP per PROM

Patients with MG from MRW General population
PROMIS-Dyspnea Characteristics N = 325 US COVID population [19] N = 126, pre-COVID scores
FACIT-Fatigue N = 324 German general population [22], N = 2576
PROMIS-Sleep Disturbance N = 251 US population
EQ-5D-5L and six bolt-on questions N = 1299 POPUP, N = 9000
MG-ADL N = 1236 POPUP, N = 9000
MG-QoL-15r N = 1177 POPUP, N = 9000
HUI-3 N = 540 POPUP, N = 9000
HADS N = 1159 POPUP, N = 9000

PROMIS Patient-Reported Outcomes Measurement Information System, FACIT Functional Assessment of Chronic Illness Therapy, EQ-5D-5L EuroQol 5-Dimension 5-Level questionnaire, MG-ADL Myasthenia Gravis Activities of Daily Living, MG-QoL-15r MG Quality of Life questionnaire, HUI-3 Health Utilities Index Mark, HADS Hospital Anxiety and Depression Scale, MRW MyRealWorld-MG  Digital study, POPUP General Population study, N sample size