Table 2.

Search concepts for MEDLINE database.

Concept number	SPIDER	Pearl growing	MeSH	Search query
Concept #1	Parent Guardian	Caregiver	Parents Mothers Fathers	Parent* OR mother* OR father* OR guardian OR caregiver
Concept #2	Decision	Decision support	Decision making	decision OR decision making OR decision support
Concept #3	Experience	Perception View Feeling Attitude Belief	Life experience	experience OR view OR feeling OR perception OR attitude OR belief*
Concept #4	Child	Infant	Children Paediatric	child* OR infant OR paediatric
Concept #5	Life-limiting Life-threatening	Medically complex	Disabled Severely disabled Cancer Oncology Neoplasm Tumour Intensive care Long term care Terminal care	‘life-limiting’ OR ‘medically complex’ OR disabled OR ‘severely disabled’ OR ‘terminal care’ OR ‘long term care’ OR ‘intensive care’ OR cancer* OR oncolog* OR tumour* OR tumour* neoplasm OR malignan*