Table 1.

Summary of key data items currently available for each congenital anomaly registration in the NCARDRS congenital anomaly dataset

Mother	Pregnancy	Baby	Anomaly	Test*‡
Patient identifier	Pregnancy identifier	Patient identifier	Anomaly identifier	Test date
NHS no	Expected delivery date	NHS no.	Confirmation status of anomaly†	Test type
Date of birth	Pregnancy outcome	Sex	ICD-10 and BPA extension code	Test result(s)
Ethnicity	Delivery information	Date of birth	Description of the anomaly	Test provider
Country of birth	Screening details‡	Gestational length at delivery	Gestation first suspected	Test requestor
Vital status	Body mass index	Birth weight (g)	Gestation at confirmation	Ultrasound markers
Previous births and pregnancies	Smoking status at booking, alcohol and substance use	Birth order if from a multiple pregnancy	Diagnostic method	Indication
	Maternal illness status	Method of delivery	Aetiology of the anomaly/ies
	Folic acid intake	Surgical status
	Assisted conception status	Date of death
	No. of fetuses	Postmortem status
	Consanguinity
	Deprivation (derived from postcode of residence at delivery)
	Postcode at booking and at delivery

Data are available for all years.

*Test information is only consistently registered for conditions with enhanced registration (ie, those conditions within the FASP audit).

†Some fields may require additional research ethics committee or other approvals on request.

‡Confirmation status: Anomalies are registered according to varying degrees of certainty depending on the clinical evidence available (confirmed, probable or suspected). Anomalies remain at the level of suspected until the evidence supporting the diagnosis of the anomaly attains agreed confirmation criteria.

BPA, British Paediatric Association; FASP, International Classification of Diseases 10th revision; ICD-10, International Classification of Diseases 10th revision; NCARDRS, National Congenital Anomaly and Rare Disease Registration Service; NHS, International Classification of Diseases 10th revision.