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. 2024 Jan 12;14(1):e077743. doi: 10.1136/bmjopen-2023-077743

Table 2.

The number of pregnancies, babies and anomalies recorded registered since NCARDRS has been in operation until 2020 data extracted 13 June 2023

2015 2016 2017 2018 2019 2020
No. of regions reporting 4 7 7 10 10 10
No. of pregnancies with babies with a congenital anomaly of any status 2915 9524 9882 20 036 19 636 18 440
No. of babies with a congenital anomaly of any status 2932 9574 9937 20 145 19 767 18 541
No. of mothers 2908 9506 9868 20 007 19 611 18 416
Total no. of anomalies 5902 18 839 18 803 35 483 34 500 33 344
Total no. of confirmed and probable anomalies 5432 15 819 15 316 28 282 25 988 25 617
No. of live and still births in regions with active congenital anomaly registration (denominator) 141 474 329 301 320 013 628 171 614 952 589 454

The numbers may differ from published estimates at point of reporting because of continued accumulation of data.

Birth population calculated using ONS row level birth information available via the UK Health Security Agency (UKHSA) DataLake.

NCARDRS, National Congenital Anomaly and Rare Disease Registration Service; ONS, Office for National Statistics.