Table 3.
Coding Hierarchy and Ranking of Theme Frequency for Total and Per Disease Stage.
| Parent Code | Child Code (“Themes”) | #a | %b | Milda | Moda | Severea |
|---|---|---|---|---|---|---|
| Benefits caregiver | Relationship | 37 | 4.1 | 20 | 8 | 0 |
| Respite | 23 | 2.5 | 10 | 5 | 6 | |
| Benefits PWD | Connection | 178 | 19.6 | 106 | 53 | 8 |
| Stimulation: cognition | 141 | 15.6 | 49 | 80 | 16 | |
| Stimulation: change of pace | 85 | 9.4 | ||||
| Sense of self: internal | 124 | 13.7 | 84 | 41 | 4 | |
| Sense of self: external | 51 | 5.6 | ||||
| Enjoyment | 95 | 10.5 | 28 | 26 | 5 | |
| Health | 88 | 9.7 | 29 | 27 | 4 | |
| Independence/Coping | 64 | 7.1 | 20 | 18 | 6 | |
| Negative experience | Difficult for PWDs | 87 | 9.6 | 37 | 17 | 3 |
| PWD uninterested | 79 | 8.7 | 4 | 17 | 14 | |
| Difficult for caregiver/others | 37 | 4.1 | 9 | 14 | 1 | |
| No meaning for PWDs | 35 | 3.9 | 9 | 8 | 3 |
Abbreviation: PWD, person with dementia.
a Number of times the theme appeared in the data.
b Percentages represent number of times a theme was coded in the data divided by the total number of caregiver respondents (N = 906).