Table 1.

Examples of Representative Quotations of People With Dementia and Family Caregivers’ Focus Groups.

Themes	No	Quotation (representative)
Insufficient information provided	1	“The problem is that if I don’t demand information … I can’t know how my mother is if I’m not told anything”
	2	“ Doctors have ten minutes available per patient and have to explain to you everything about senile dementia”
	3	“Most of the people surf the internet and look for information”
Specific dementia care	4	“There should be a specialized centre for all these people.”
	5	“The fact of going to a specialized institution or to the same healthcare professional, where that person already knows it, reduces the distress of the caregiver.”
Long-term care institutionalization	6	“It’s hard to remove a person from home. It was very hard for me and I would return him home every single day. It seemed that I was getting rid of him because he would rush me”
	7	“… I visit my husband, I am with my husband in the morning and in the afternoon, everything runs smoothly”