Table 1.

Summary of Themes and Categories.

Themes	Categories
Dementia	Awareness about; type; duration
Relationship with relative	Prior to dementia; change with role
Emotions	Mixed; negative; positive; neutral
Role	Appraisal (pos/neg); change in role; execution of role; attitudes toward role
Positive aspects	Significant; impact; strategies (coping, constructive)
Negative aspects	Significant; impact; strategies (coping, unhelpful)
Support	Source; physical; emotional; material; family
Professional health care—general	Supportive; unsupportive; negative; neutral
Placement in care	Placed; duration; guilt; positive; negative; respite
Professional EoL care	Satisfied; dissatisfied; knowledgeable
Death/post death of person with dementia	Readiness; positive environment; negative environment; future consideration
Bereavement	Outcome; support
Grief	Acknowledged; anticipatory; ongoing
Loss	Cognitive losses (pwd); loss—ambiguous
Future thoughts	Various
Reflection for changed actions	Various
Spiritual faith	Present (level)

Abbreviations: EoL, end of life; pos, positive; neg, negative; pwd, people with dementia.