Table 2.

Topics that require more training, tools and education to support effective patient engagement in research

Key topics presented in alphabetical order
Advocating for yourself (as a patient partner) and your voice in the room	Equity, diversity and inclusion considerations
Authorship and intellectual property	Establishing and negotiating expectations among research partners
Barriers to engagement experienced by patient partners	Ethics (e.g. when consent/assent is not needed from patient partners)
Budgeting for engagement	Evaluation of engagement processes
Communicating with patient partners and affirming the value they bring	Initiating and maintaining patient partnerships
Compensation (of patient partners)	Patient engagement in the basic sciences
Creating the space for patient partner input	Sharing lived experiences in the research and public setting
Engaging patient partners with diverse backgrounds and viewpoints	The value of patient partners