Acceptability |
“I like the fact that there’s a wide variety of things; I feel confident that at least 1 or 2 of these things from the 7 kind of content weeks would be helpful.” [Patient 7]
“I do think something like this could fit into my day-to-day life, because... it would give me some type of structure.” [Patient 8]
“I really think this looks like a very comprehensive plan to address holistically what may be contributing to people who have irritable bowel syndrome.” [Provider 3]
“I think improving accessibility, such that it’s one that I can give to [all] sort[s] of patients, regardless of their insurance status, regardless of where they live, or sort of their profession, would be good.” [Provider 8]
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Appropriateness |
“I feel like it would keep me more accountable, and it would give me somebody I can talk through everything with instead of just trying to figure it out on my own.” [Patient 11]
“I think just having that intentionality and having structure is really important if someone wants to make a change.” [Patient 4]
“So, I’ve done that in my therapy with a psychologist, but my therapist doesn’t know very much about IBS, and my doctor that knows about IBS, I just see them like for 15 minutes every 3 months or something. So, it would be nice to have someone who is aware of the integration of those things.” [Patient 7]
“When you’re doing something yourself and it doesn’t rely on a medication and this gives people a little bit of power. It gives them structure.” [Provider 12]
“I think that it also gives some accountability in terms of, ‘Did you do these exercises?’ ‘Did you bring your record?’ and these kinds of things.” [Provider 8]
“When you’re depressed or anxious and when your body feels like it’s turning against you, which is what a lot of people with IBS I hear being said to me, it gives you a facet of control. When you’re doing something yourself and it doesn’t rely on a medication and this gives people a little bit of power. It gives them structure.” [Provider 10]
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Feasibility |
“I guess the part that might be difficult is just making sure someone actually does it, and sticking with it, which is the hard part.” [Patient 4]
“I just think that somebody new to [IBS] would be more apt to get into this versus somebody who’s been through all this; they’d be like, ‘I’ve done all this stuff already.’” [Patient 5]
“I’m curious, but also, I’m skeptical. I don’t know why. Just because I feel like I’ve tried so many things and I’m like, ‘Really? Fiber is going to be the thing?’ Maybe I just have more to learn.” [Patient 10]
“I think the hard part is having a person that’s motivated enough to actually go through and do this on their own... unless there’s some accountability.” [Provider 12]
“I think if they go in for counseling, they have more time to do CBT-type stuff. They have more time to talk to the patient about it. Whereas in primary care we don’t always have that kind of time, but I think if it’s something small and short that I could give them during the visit and then they can work on it.” [Provider 2]
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Usability |
“I’d like it with an app, something that’s visual on the app as well as verbal. I’d like some types of video content to actually show me certain tasks for working through planning out certain things, as well as verbalized communication.” [Patient 8]
“In an e-course-esque environment I think would be really helpful or an app, if that’s a possibility.” [Patient 10]
“If you construct your own. Build your own, I don’t know, Amazon cart, I don’t like the bundle.” [Patient 1]
“I’d rather do it by myself and if there was somebody after the fact that wanted to check up on me for 5 minutes and say, how did it go? Do you have any questions? Did you have any concerns? Did it work?” [Patient 2]
“I have a very ger[iatric] heavy panel, which certainly would not do well with an app and need kind of person kind of contacting them on a weekly basis in some shape or form phone call or something. Whereas I could definitely see my more hyper-focused, got a lot of stuff going on, needing it more as an app with an alert that pops up on their phone that says, ‘Hey, it’s time to work on your skill for today. Let’s set aside 15 minutes to do this,’ or whatever.” [Provider 1]
“Just a very brief: Patient’s doing well. Patient does not seem to be progressing. Patient is not participating. They haven’t returned any of their journals.” [Provider 7]
“Afterwards as a summary, was this overall sort of useful or which parts of it did you find use in? And, so then I know what are your residual symptoms that we can sort of work on and address because I think it’s also hard to see the clear benefit right away can sometimes take a while even with patients. Once it’s even kicked in, they have... for them to start suddenly realizing so many months down the road, ‘Actually my symptoms are doing a lot better. This used to be something I would think about all the time, and now it’s kind of rare.’” [Provider 8]
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