Table 1.

Outcomes investigated in the study.

Aspects	Outcomes
Symptom burden	Patient-reported symptoms Most burdensome symptomsa Areas of involvement (body parts) Photosensitivity and body imagea Sleep disorders Comorbiditiesa
Overall HRQoLb impact	Psychological well-being (positive feelings and negative feelings) Physical well-beinga (mobilitya, activities of daily livinga, recreation and leisure, and role participationa) Impact and functioning (including parental care, burden to or on others, and economic or working capability impacts)a
Treatment experience	Current treatment options (nonpharmacological and pharmacological interventions) Treatment options and HRQoL aspects based on treatmenta Level of satisfaction with current treatment optionsa Diagnostic delay and health care availability Coping mechanisms

^aOwing to low sample size or insufficient data, these outcomes were not analyzed in the cutaneous lupus erythematosus population.

^bHRQoL: health-related quality of life.