Table 3.
Distribution of HRQoLa aspects among patients with SLEb (n=2199c patient mentions from 5636 posts) and CLEd (n=78c posts from n=47 patients).
| HRQoL aspects | Proportion of patients, n (%) | |
|
|
SLE | CLE |
| Negative feelings | 521 (23.7) | 20 (25.6) |
| Recreation and leisure | 314 (14.3) | 14 (17.9) |
| Health care availability | 205 (9.3) | 8 (10.3) |
| Positive feelings | 183 (8.3) | 8 (10.3) |
| Mobility | 176 (8) | 7 (8.9) |
| Energy and motivation | 155 (7) | 4 (5.1) |
| Cognitive capabilities | 154 (7) | 5 (6.4) |
| Sleep and rest | 114 (5.2) | 3 (3.8) |
| Work capacity | 113 (5.1) | 3 (3.8) |
| Activities of daily living | 106 (4.8) | —e |
| Financial resources | 104 (4.7) | 2 (2.6) |
| Transport | 49 (2.2) | 3 (3.8) |
| Intimacy and sex | 5 (0.2) | — |
aHRQoL: health-related quality of life.
bSLE: systemic lupus erythematosus.
cIndicates that patients were counted more than once if they discussed more than one HRQoL aspect in a post.
dCLE: cutaneous lupus erythematosus.
eNot available.