Table 2.

Consensus for statements on the progression of nmDMD indicate that respondents agreed that the decline of muscle function of the lower limbs, the first to decline, can lead to loss of ambulation and that a decline in cardiac and pulmonary function are two of the major causes of death

Theme	Statement	Overall Agreement	Consensus
Progression of nmDMD	The speed of progression of nmDMD is variable and individual to the patient	85.0%	High
	The earlier nmDMD patients are diagnosed and treatment initiated, the greater the delay in muscle decline	95.0%	Very high
	Proximal lower limb muscles are amongst the first to decline in nmDMD leading to loss of ambulation	100.0%	Very high
	Decline in cardiac and pulmonary function are two of the major causes of death in nmDMD	100.0%	Very high

The threshold for consensus defined as > 66%, with consensus being defined as high at > 66% and very high at > 90% of respondents selecting agree or strongly agree