Table 4.
Research Title and Authors | Types of Research | Setting and Country of Research | Aim of Research | Data Collection Methods | Main Findings |
---|---|---|---|---|---|
A pilgrim’s journey—When Parkinson’s disease comes to an end in nursing homes Lex et al., 2018 [30] |
Mixed methods; semi-structured interviews | Residential homes, Austria | Gaining empirical data on the nursing demands of residents in late stage of Parkinson’s disease being cared for in residential homes | Semi-structured interviews | Future uncertainty or worry, a sense of abandonment by professionals, particularly neurologists, when older adults enter nursing care, and that effective palliative care relies on compassionate nursing and timely medical support. |
Improving care home life for people with Parkinson’s Oates et al., 2019 [32] |
Qualitative semi-structured interviews |
Care homes, United Kingdom | To explore the decision-making processes at the time of placement and the experiences of care home residents with Parkinson’s disease | Semi-structured interviews | Loss of independence, relationships, and functional abilities; challenges in transitioning, adjusting and adapting to life in a care home; and considerations regarding medication timing, control and impact. |
Caring for persons with Parkinson’s disease in care homes: Perceptions of residents and their close relatives, and an associated review of residents’ care plans Armitage et al., 2009 [33] |
Qualitative interviews |
Care homes, United Kingdom |
To collect the views of persons with Parkinson’s disease and their close relatives in care homes to establish their collective views of the effectiveness of care | Qualitative interviews | Limited comprehension of Parkinson’s disease, encompassing medication and functional variations; the impact of care home environment and culture, including the challenges posed by inflexible institutional routines for individuals with Parkinson’s disease; and the absence of comprehensive multidisciplinary involvement. |
Parkinson rehabilitation in nursing homes: A qualitative exploration of the experiences of patients and caregivers Fidder et al., 2022 [31] |
Qualitative semi-structured interviews |
Nursing homes, The Netherlands |
To address the experiences and needs of patients and their caregivers to propose recommendations for improvement | Semi-structured interviews | Autonomy deprivation, encounters with paternalistic practices and reliance on others; challenges arising from inadequate interprofessional communication; and a spectrum of positive and negative encounters in peer interactions. |
Perspectives on Parkinson disease care in Dutch nursing homes Van Rumund et al., 2014 [34] |
Qualitative semi-structured interviews and focus groups |
Nursing homes, The Netherlands |
To analyse the quality of Parkinson’s disease care in Dutch nursing homes from the perspectives of residents, caregivers and health care workers | Semi-structured interviews | Inadequate staff empathy and emotional support, insufficient staff expertise in Parkinson’s disease matters, including motor fluctuations, medication errors—primarily mistimed levodopa administration—and suboptimal care organization with restricted access to neurologists and Parkinson’s disease nurse specialists. |