Table 1.
Stakeholder demographic information (n = 71).
| Variable | n (%) |
|---|---|
| Age a (Mean = 63.0, SD = 9.8) | |
| Gender b | |
| Female | 47 (70.1) |
| Male | 20 (29.9) |
| Diagnostic subtype * | |
| PCA 1 | 26 (36.6) |
| FTD 2 | 22 (31.0) |
| PPA 3 | 9 (12.7) |
| YOAD 4 | 7 (9.9) |
| Mixed dementia | 4 (5.6) |
| Other dementia 5 | 3 (4.2) |
| Status | |
| PLwRD 6 | 27 (38.0) |
| Care-partner | 39 (54.9) |
| Bereaved carer | 5 (7.0) |
| Relationship to PLwRD | |
| Spouse | 33 (75.0) |
| Child | 8 (18.2) |
| Other relative | 3 (6.8) |
| Ethnicity c | |
| Caucasian | 63 (92.6) |
| Asian | 4 (5.9) |
| Métis d | 1 (1.5) |
a age not identified = 4, b gender not identified = 4, c ethnicity not identified = 3, d https://indigenousfoundations.arts.ubc.ca/metis/(accessed on 15 October 2023); 1 posterior cortical atrophy, 2 frontotemporal dementia (including familiar FTD (fFTD) and behavioural variant FTD (bvFTD), 3 primary progressive aphasia, 4 young-onset Alzheimer’s disease, 5 Lewy body dementia (LBD) and young onset vascular dementia (YOVaD), 6 person living with rare dementia, * inclusive of care-partners and PLwRD per type.