Table 3.
Themes across poems organised by prompt.
| Prompts | Themes/Subthemes | Associated Poems 1 |
|---|---|---|
| Prompt 1: What is your experience of having (type of dementia) or being a family member caring for someone with this type of dementia? |
Temporality Disrupted Uncharted Territory Being in the Moment Rediscovering Identities and Relationships |
(1) A Steep Learning Curve (2) Still Me (3) No One Would Believe Me (4) Changing (5) Eleven (6) Accept This Honour (7) When Will I No Longer Be Me? (8) Out Here in The Rain (9) How May I Help You? |
| Prompt 2: How would you describe (type of dementia) to a friend or family member? |
A Rollercoaster Heart-Breaking Losses Shifting Selves and Changing WorldsMisdiagnosed and Misunderstood |
(10) Bewilderingly So (11) Where to Begin (12) Unwavering Braveness (13) There is So Much I Could Say (14) Description (15) I Know You Have Noticed (16) Tumbling, Jumbling (17) Why I Repeat the Same Question at Random (18) Who Our Loved Ones Used To Be |
| Prompt 3: What does support mean to you? |
Multidimensional Support Not in This alone Compassion and UnderstandingSupport as an Action |
(19) Truth: A Fib (20) SUPPORT (21) What Else Could I Try To Do (22) A Journey (23) Relief (24) Help Me (25) To Continue (26) The Resiliency (27) Please Stick Around |
1 Supplemental Figure S2 contains all poems.