Table 1.

Summary of the main results.

Information	Source of information: training programs, rehabilitation programs, consultations (non-digital) Parents as a source of information (non-digital) Manufacturers as a source of information (digital)
Peer-to-peer	Online forums and social media do not play a major role in peer relations ➔ lack of information about existing platforms and little interest Parents for parents Friends, family or other contact person / confidants play an important role, not only to get information, but for emotional support
Communication and interaction between patient and physician	Little use of digital interventions Different perspective about the use of digital interventions E-mails not used by adolescents ➔ perceived as a not efficient and non-secure Communication and interaction happen between parents and physicians, excluding patients