Table 2.
Participant Input and Corresponding Refinements to HEARTPrep©.
| Participant Input | Refinements |
|---|---|
| Phase III: Developing Prototype and Testable Intervention | |
| Suggested additional thoughts and feelings that may be common after a CHD diagnosis | • Added thoughts (eg, it's in God's hands) • Added feelings (eg, regret, jealousy) |
| Suggested additional coping strategies: (1) focus on what you can control, (2) embrace the journey | • Provided tips for focusing on what you can control (eg, make a list of coping strategies to use in the hospital, create a daily routine and try to stick to it) • Provided tips for embracing the journey (eg, decorate your baby's hospital room with things from home, celebrate milestones in the hospital) |
| Phase IV: Think-Aloud Testing | |
| Difficulty navigating through module (can’t locate home page) | • Removed direct links between articles so users return to module home page between each article |
| Link to access resources and its positioning is misleading (eg, mistaken for a message center or IT help). | • Changed link to access resources from “Find Help and Support” to “Resources for Your Family” • Simplified description to “Check out websites and other helpful resources” • Changed positioning of a link to increase visibility |
| Link to external website broken | • Fixed link |
| Missing thoughts, feelings, and actions that may be common after a CHD diagnosis | • Added thoughts (eg, how will this affect my other children?) • Added feelings (eg, fear of going into labor early) • Added actions (eg, preferred to be alone or not talk about it) |
| Missing difficulties in relationships that may be common after a CHD diagnosis | • Added difficulties in relationships (eg, they don’t understand it's a lifelong condition, my partner is so busy that I feel like I am dealing with this alone) |
| Content perceived as unrealistic | • Removed “I am proud of myself for…” as a suggestion for coping self-talk |
| Unclear wording | • Made minor wording changes to improve clarity |
| Phase V: Beta Testing | |
| Difficulty remembering to complete modules; Suggested automated reminder with a direct link to an incomplete module. | • Plan to add automated push notification with a direct link to the module if not completed in 7 days |
| Difficulty making time for modules; suggested discussing module content within each telehealth session to communicate its importance and relevance; suggested personalized message (eg, email, text) to remind users that module content will be discussed. | • Inform users that assigned modules will be discussed during telehealth sessions • Discuss module content during each telehealth session to reinforce its importance and relevance (eg, what was helpful, what stood out, what was surprising) • Send personalized message 2-3 days before telehealth session to remind users that module content will be discussed (if not yet completed) |