Table 5:
Patient Reported Outcomes at Presentation via Risk survey
| LTS | STS | ||
|---|---|---|---|
|
N = 20 n (%) |
N = 61 n (%) |
||
| Number of symptom categories reported by patient at presentation | 1 | 4 (20) | 18 (30) |
| 2 or more | 16 (80) | 39 (64) | |
| Time with symptoms before presentation | N = 23 | N = 72 | |
| No symptoms | 0 (0) | 1 (1) | |
| <6 months | 17 (74) | 53 (71) | |
| 6 months to 1 year | 5 (22) | 5 (7) | |
| >1 year | 0 (0) | 3 (4) | |
| Don’t recall | 1 (4) | 10 (14) | |
| Symptom category | |||
| N = 20 | N = 61 | ||
| Seizures | 3 (15) | 13 (23) | |
| Headaches | 10 (50) | 23 (38) | |
| Vision problems | 1 (5) | 6 (10) | |
| Hearing loss | 1 (5) | 1 (2) | |
| Taste/smell changes | 1 (5) | 3 (5) | |
| Facial numbness | 0 (0) | 4 (7) | |
| Memory problems/confusion | 5 (25) | 22 (36) | |
| Nausea/vomiting | 4 (20) | 4 (7) | |
| Personality/behavior changes | 3 (15) | 6 (10) | |
| Difficulty with balance/coordination/walking | 6 (30) | 15 (25) | |
| Speech difficulties | 2 (10) | 12 (20) | |
| Difficulty swallowing | 2 (10) | 1 (2) | |
| Weakness in arms or legs | 5 (25) | 12 (20) | |
| Sensory changes in arms or legs | 2 (10) | 9 (15) | |
| Fatigue | 1 (5) | 0 (0) | |
| Pain | 0 (0) | 1 (2) | |
| Dizziness/loss of consciousness | 0 (0) | 2 (3) | |
| Other | 0 (0) | 1 (2) | |
| No symptoms | 0 (0) | 2 (3) | |
| Don’t recall | 0 (0) | 1 (2) | |