Table 2.
Comfort, Barriers, and Post-intensive Care Syndrome in Pediatrics Screening Practices of Primary Care Providers in Care of Children After a PICU Admission
| n (%) | |
|---|---|
| Importance of primary care follow-up after PICU admission | |
| Agreement with the statement “I believe follow-up with a primary care provider is important after a child’s admission to PICU” | |
| Strongly agree | 20 (77) |
| Agree | 6 (23) |
| Neutral | 0 (0) |
| Disagree | 0 (0) |
| Strongly disagree | 0 (0) |
| Case studies of comfort level with providing post-PICU care | |
| 9-mo-old child, full term and previously healthy, admitted to the PICU due to viral bronchiolitis, intubated × 3 d, discharge home at prehospital baseline functional and health status | |
| Not at all comfortable | 0 (0) |
| Somewhat uncomfortable | 0 (0) |
| Neutral | 0 (0) |
| Somewhat comfortable | 0 (0) |
| Very comfortable | 26 (100) |
| 9-mo-old child, full term and previously healthy, admitted to the PICU due to acute respiratory distress syndrome, required extracorporeal membrane oxygenation support × 14 d, unable to wean from ventilator, discharge home with tracheostomy, ventilator, and gtube | |
| Not at all comfortable | 1 (4) |
| Somewhat uncomfortable | 8 (31) |
| Neutral | 2 (8) |
| Somewhat comfortable | 14 (54) |
| Very comfortable | 1 (4) |
| Barriers to caring for patients following PICU admission | |
| Inadequate or missing documentation from the hospital stay | 15 (58) |
| Care coordination with specialty providers | 18 (69) |
| Discomfort or difficulties with managing new home equipment | 18 (69) |
| Discomfort or difficulties with managing increased medical complexity | 14 (54) |
| Discomfort or difficulties in discussing new medical complexities with child’s caretakers | 5 (19) |
| Lack of ancillary supports—social work, care management | 11 (42) |
| Knowledge of post-intensive care syndrome in pediatrics | |
| Familiar with term “post-intensive care syndrome in pediatrics”a | 7 (27) |
| Level of familiarity with the term “post-intensive care syndrome in pediatrics”a | |
| Not at all familiar | 18 (69) |
| Slightly familiar | 3 (12) |
| Somewhat familiar | 5 (19) |
| Moderately familiar | 0 (0) |
| Extremely familiar | 0 (0) |
| Screening for post-intensive care syndrome in pediatrics domains after PICU admission | |
| General assessment of child | 23 (88) |
| Child’s physical and functional status | 20 (77) |
| Child’s emotional and mental health | 17 (65) |
| Child’s social functioning | 7 (27) |
| Child’s return to school or educational concerns | 16 (62) |
| Caregiver’s emotional and mental health | 15 (58) |
| Resource needs in caring for patients following PICU admission | |
| Education about specific care needs of children after PICU admission | 23 (88) |
| Timely delivery of patient records from PICU admission | 17 (65) |
| Care management resources | 18 (69) |
| Social work resources | 15 (58) |
| Psychology resources | 14 (54) |
a
These represent questions 11 and 12. Question 11 asked “Are you familiar with the term ‘Post-Intensive Care Syndrome in Pediatrics (PICS-p)’?” with a “yes/no” response. Question 12 asked “How familiar are you with ‘Post-Intensive Care Syndrome in Pediatrics'?” with a Likert scale. One participant answered with inconsistent results: they responded “no” to question 11 but “slightly familiar” to question 12.