Table 1.

Overview of the purpose, format and materials.

Number of PPI meetings: 11
PPI contributors	Purpose and activities	Format	Materials
Deep End PPI Group	Open to discussion to (1) brainstorm patient experiences of communicating with, accessing and using healthcare services; and (2) to understand the barriers and facilitators underpinning these experiences.	One face‐to‐face group workshop, May 2022	PowerPoint presentation; post‐it notes; flip chart paper; A4 visual images
Deaf community	Discussion about patient experiences of the local IBD service from a deaf person's perspective and a professional stakeholder from the Deaf Citizens Advice team and the necessary arrangements to ensure accessibility for people with hearing disability. Verbal feedback collected on service changes trialled to date and key outputs.	Two individual consultations held online by Google Meet and email, May 2022	Handout of draft documents for review
Roma community	Open discussion about 1) common themes that have come up and 2) new issues and experiences that are unique to their community. Co‐design of key outputs.	One face‐to‐face group workshop and individual consultation, both with interpreters, September 2022	Flip chart paper; post‐it notes; handouts of draft documents
LGBTQIA+	Discussion about patient experiences of the local IBD service from an LGBTQIA+ person's perspective; verbal feedback on service changes and key outputs.	Two individual consultations held online and one held face‐to‐face, September 2022	Handout of draft documents for review
Healthy Her	Written survey feedback on patient experiences; open discussion about common issues; verbal feedback on service changes; dissemination of key outputs.	One face‐to‐face group workshop, March 2023	IBD Toolkit handouts; feedback forms
ShipShape	To raise awareness of the AWARE‐IBD project; share learnings and early findings from the project; dissemination of key outputs.	Two face‐to‐face group workshops and a local event, July 2023	Banners, flyers and copies of the IBD Toolkit