TABLE 2.

Demographic characteristics of the survey participants and codes of the stakeholder groups to which they belonged.

Stakeholder group	Code of the stakeholder group	Number of survey participants	Percentage of the total number of survey respondents
Patients	P	169 (Of whom 109 were also members of patient organizations)	77%
Carers	C	35 (Of whom 20 were also members of patient organizations)	16%
Members of patient organizations who are neither patients nor carers	MPO	16	7%

Gender representation
Female		145	66%
Male		71	32%
Non-binary		3	1%
Preferred not to say		1	1%

Age
18-24		2	1%
25-34		29	13%
35-44		35	16%
45-54		55	25%
55-64		53	24%
65-74		30	14%
75 or older		16	7%

Highest level of completed education
Primary education		3	1%
Secondary education		24	11%
Bachelor's degree or equivalent		53	24%
Master's degree or equivalent		96	44%
Doctorate degree		44	20%

Total number of participants: N=220