TABLE 1.
Breakdown of general respondent characteristics in the caregiver consolidation survey.
| svPPA | nfvPPA | |
|---|---|---|
| UK cohort (n) | 24 | 33 |
| Australian cohort (n) | 3 | 13 |
| All survey respondents (n) | 27 | 46 |
| Bereaved respondents (n) | 1 | 10 |
| Relationship status (partner/other, n) | 19/8 | 34/12 |
| Age at which first symptom noticed | 62.59 (6.29)b | 65.08 (8.18)b |
| Age at first GP appointment | 64.46 (6.31)c | 66.20 (8.36)b |
| Delay seeking medical advice (years) | 1.90 (1.84)c | 1.13 (1.57)b |
| Age at diagnosis | 65.93 (6.36)b | 67.64 (8.40)c |
| Time to diagnosis (years) | 3.34 (2.51)b | 2.30 (2.22)d |
| Age at survey | 70.61 (3.45)e | 71.57 (8.17)f |
| Symptoms presented in caregiver survey (n) | 75 | 62 |
| Symptoms included in final staging list (n) | 54 | 44 |
| Stage at time of survey (n): | ||
| Stage 1 | 0 | 0 |
| Stage 2 | 0 | 2 |
| Stage 3 | 3 | 6 |
| Stage 4 | 13 | 11 |
| Stage 5 | 2 | 6 |
| Stage 6 | 9 | 21 |
Note: Mean (standard deviation) data are presented unless otherwise specified. Not all questions were answered by all respondents, and missing data are coded as follows: an‐1; bn‐2; cn‐3; dn‐4; en‐5; fn‐18. The larger number of missing responses to the “Age at survey” question was largely accounted for by bereaved caregivers, that is, the person they were answering the survey about was already deceased.
Abbreviations: GP, general practitioner; nfvPPA, non‐fluent/agrammatic variant primary progressive aphasia; svPPA, semantic variant primary progressive aphasia.