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IMPLEMENTED MODEL |
COMPONENTS* |
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National Clinical Programme for Epilepsy [42,46,47,48,49,50] |
Cross-sector collaboration: community supports, secondary care, tertiary care
MDTs: nursing, primary care, neurology, epileptology, emergency medicine
CPGs & care pathways: Integrated care pathway for emergency department seizure management
ENs: triage and connect PLWE with services across sectors
Care coordination: often performed by nurse or EN
CMPs: ENs play a key role in assessing care arrangements
Education for HCPs: education on care pathways for new and junior staff
Education for PLWE & families: education sessions provided by HCPs
SDM: facilitated by EN and through CMPs
Telehealth: telephone advice line virtual clinics to enhance communication between HCPs
Shared EMRs: shared across epilepsy services to improve care coordination
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Epilepsy nurse-led model [42] |
Cross-sector collaboration: primary, secondary, tertiary care sectors
MDTs: doctors, specialists, nurses, ENs
Care coordination: ENs coordinate care across health and social care services
Psychological services: ENs provide psychological and wellbeing support
CMPs: ENs complete comprehensive treatment assessments
Education for PLWE & families: ENs provide person-centred education to promote confidence to self-manage
SDM: ENs engage in SDM with PLWE and families to enhance care outcomes
Telehealth: ENs operate telephone advice lines to assist with PLWE and family concerns
Shared EMRs: utilised by ENs as a guide to structure healthcare information
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Integrated care pathway for seizure management in emergency department [46,47] |
MDTs: inter-specialty approach; emergency department hospital staff and rapid clinic staff
CPGs & care pathways: embedded national guidelines into care pathway
Education for HCPs: provided for junior doctors and new staff
ENs: EN service for triage and discharge follow-up
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Integrated care pathway for homeless PLWE [41] |
Cross-sector collaboration: health, community sectors
MDTs: community services staff, hospital staff, epilepsy specialist
CPGs & care pathways: new care pathway for homeless PLWE
CMPs: jointly created treatment plans disseminated across providers
Shared EMRs: care plans and outcomes shared on hospital records, national epilepsy patient record, and community records
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Urgent epilepsy clinic [43] |
MDTs: epilepsy physicians, triage nurses, social worker
Psychosocial services: clinic focused on education, counselling, and addressing psychosocial risk factors
CMPs: seizure action plans deployed to improve knowledge around home seizure management
Education for HCPs: epilepsy education on seizure management
Education for PLWE & families: facilitated by seizure action plan development
Shared EMRs: used to manage the proper dosing of emergency seizure medications
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Neurocare service [44] |
Cross-sector collaboration: primary care, hospital, community sectors
MDTs: hospital discharge team and community neurological nurses
Care coordination: community neurological nurses helped PLWE navigate multiple providers
CMPs: community neurological nurse-led individual goal setting and action planning
Education for PLWE & families: community neurological nurses provided education about medications, symptom management and lifestyle changes
SDM: community neurological nurses worked with PLWE on their self-management planning
Telehealth: care delivery modes included telephone, videoconferencing, email, and text messaging
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Children and Young People’s Health Partnership Evelina London Model [45] |
Cross-sector collaboration: primary care, hospital, community sectors
MDTs: children’s nurses, general practitioners, paediatricians, mental health specialists
Care coordination: children’s nurses coordinate and deliver care across sectors
Psychosocial services: biopsychosocial pre-assessment to inform early intervention care
SDM: active family involvement in decision making processes and shared learning
Telehealth: nurses communicated with families via telephone, email, and text messaging
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