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. Author manuscript; available in PMC: 2025 Apr 1.
Published in final edited form as: Dev Med Child Neurol. 2023 Sep 28;66(4):456–468. doi: 10.1111/dmcn.15747

TABLE 3.

Epilepsy and seizure data for individuals with CDD compared with those with other infantile-onset epilepsies with a suspected or defined genetic etiology

Clinical feature CDD Other infantile-onset epilepsies p Other infantile-onset no genetic diagnosis p Other infantile-onset confirmed genetic epilepsies p

n (%) n (%) n (%) n (%)
Total cohort 137 313 203 110
Developmental and epileptic encephalopathy (≥1 year) 71 (64.0) 187 (65.4) 0.815 125 (68.3) 0.447 62 (6.2) 0.576
Treatment-resistant epilepsy 82 (95.3) b 217 (70.5) <0.001 138 (69.7) <0.001 79 (71.8) <0.001
History of status epilepticus 6 (7.1) b 91 (29.2) <0.001 57 (28.2) <0.001 34 (30.9) <0.001
Epilepsy type <0.001 <0.001 <0.001
 Focal 10 (8.4) a 103 (35.9) 56 (30.8) 47 (44.8)
 Generalized/mixed 109 (91.6) 184 (64.1) 126 (69.2) 58 (55.2)
Seizures with multiple phases 60 (45.8) 18 (5.9) <0.001 12 (6.1) <0.001 6 (5.6) <0.001
Seizure types
 Generalized motor 113 (82.5) 177 (56.9) <0.001 123 (60.6) <0.001 54 (50.0) <0.001
 Generalized non-motor 16 (11.9) 39 (12.6) 0.851 24 (11.9) 1.000 15 (13.8) 0.672
 Focal motor 65 (48.5) 181 (57.8) 0.070 103 (50.7) 0.688 78 (70.9) <0.001
 Focal non-motor 15 (11.6) 105 (33.8) <0.001 63 (31.2) <0.001 42 (38.5) <0.001
 Epileptic spasms (generalized, focal, or unknown) 90 (65.7) 131 (41.9) <0.001 97 (47.8) 0.001 34 (30.9) <0.001
Any EEG encephalopathy pattern 81 (87.1) b 222 (71.8) 0.003 150 (74.6) 0.015 72 (66.7) <0.001
 Burst suppression 3 (3.2) 17 (5.5) 0.143 9 (4.4) 0.374 8 (7.4) 0.067
 Hypsarrhythmiad 27 (30.0) 63 (48.1) 0.007 50 (51.5) 0.003 13 (38.2) 0.382
 Generalized slowing with multifocal sharp waves 42 (45.2) 113 (36.6) 0.263 77 (37.9) 0.168 36 (33.3) 0.728
 Slow spike and wave with or without fast activity 11 (11.8) 10 (3.2) 0.025 8 (3.9) 0.148 2 (1.9) 0.042
 ESES 0 1 (0.3) 1.000 1 (0.5) 1.000 0 N/A
 Other 33 (35.4) 59 (19.1) 0.205 34 (16.7) 0.095 25 (23.1) 0.802

The p-values were calculated from χ2 or Fisher’s exact tests compared with the CDD cohort. Significant clinical features are set in bold type after Benjamini–Hochberg correction on the basis of a false discovery rate of 0.2.

Features with missing data >10% noted

a

11–19% missing

b

30–39% missing.

d

Rate of hypsarrhythmia was calculated only for those with reported spasms. Rates of other EEG patterns were calculated out of the total number with a known EEG encephalopathy pattern.

Abbreviations: CDD, CDKL5 deficiency disorder; CDKL5, cyclin-dependent kinase-like 5; EEG, electroencephalogram; ESES, electrical status epilepticus during slow wave sleep; N/A, not applicable.