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Main themes and subthemes.
| Main themes | Subthemes |
|---|---|
| A system overwhelmed by unmet needs | A difficult system with inaccessible provision |
| Funding issues and resources | |
| A constant battle with, and within, the system | |
| The impact on quality of life | Not understanding others’ perspectives |
| Lack of support negatively affects everyone | |
| Stagnation in life: feeling stuck | |
| Hopes for the future | The value of support and external resources |
| From alone to together | |
| Empowering people in the system |
