TABLE 1.
Demographics of the core outcome set (COS) Delphi participants
| Delphi round 1 | Delphi round 2 | |
| Participants | 214 | 154 |
| Stakeholder group | ||
| Children and young people (aged ≤18 years) who have experience of living with post-COVID-19 condition# | 26 (12) | 21 (14) |
| Family and carers of children and young people (aged ≤18 years) with post-COVID-19 condition# | 115 (54) | 76 (49) |
| Health professionals who have experience treating children and young people (age ≤18 years) with post-COVID-19 condition# | 37 (17) | 32 (21) |
| Researchers studying post-COVID-19 condition# in children and young people (aged ≤18 years) | 36 (17) | 25 (16) |
| Other | Participants reclassified after round 1 review and analysed within appropriate groups | |
| Gender | ||
| Male | 47 (22) | 34 (22) |
| Female | 166 (78) | 119 (77) |
| Nonbinary | 1 (<1) | 1 (<1) |
| Other | 0 (0) | 0 (0) |
| Prefer not to answer | 0 (0) | 0 (0) |
| Age group years | ||
| 2–11 | 6 (3) | 3 (2) |
| 12– <18 | 21 (10) | 19 (12) |
| 18–39 | 40 (19) | 33 (21) |
| 40–59 | 139 (65) | 94 (61) |
| 60–79 | 8 (4) | 5 (3) |
| Geographical area | ||
| Asia | 8 (4) | 6 (4) |
| Africa | 1 (<1) | 1 (<1) |
| Australasia | 11 (5) | 8 (5) |
| Europe | 163 (76) | 120 (78) |
| North America | 24 (11) | 13 (8) |
| Central America | 1 (<1) | 0 (0) |
| South America | 6 (3) | 6 (4) |
| Ethnicity | ||
| White | 180 (84) | 130 (84) |
| South Asian | 5 (2) | 4 (3) |
| Hispanic/Latino/Spanish | 8 (4) | 6 (4) |
| East Asian/Pacific Islander | 4 (2) | 1 (<1) |
| Indigenous peoples | 0 (0) | 0 (0) |
| Black | 1 (<1) | 1 (<1) |
| Middle Eastern/North African | 6 (3) | 5 (3) |
| Other | 10 (5) | 7 (5) |
Data are presented as n or n (%). Not all percentages add up to 100% owing to rounding. COVID-19: coronavirus disease 2019. #: also known as long COVID.