TABLE 3.
Consensus workshop voting results for outcome measurement instruments
| Outcome measure | Participants voting to include in consensus meeting n/N (%) | Result | |
| Cardiovascular functioning, symptoms and conditions | PedsQL Cardiac Module | 16/28 (57) | Not included in the COMS |
| Symptom Burden Questionnaire for Long COVID (circulation scale) | 7/27 (25) | Not included in the COMS | |
| Malmo POTS score | 18/27 (64) | Not included in the COMS | |
| Gastrointestinal functioning, symptoms and conditions # | PedsQL Gastrointestinal Symptoms Scales# | 23/26 (88) | Included in the COMS |
| Questionnaire on Pediatric Gastrointestinal Symptoms | 2/26 (8) | Not included in the COMS | |
| Symptom Burden Questionnaire for Long COVID (Stomach and Digestion Scale) | 6/26 (23) | Not included in the COMS | |
| Fatigue or exhaustion# | Chalder fatigue questionnaire | 3/26 (12) | Not included in the COMS |
| PROMIS Paediatric Fatigue | 3/26 (12) | Not included in the COMS | |
| PedsQL Multidimensional Fatigue Scale# | 26/26 (100) | Included in the COMS | |
| Symptom Burden Questionnaire for Long COVID (fatigue scale) | 3/26 (12) | Not included in the COMS | |
| Post-exertion symptoms | CDC symptom inventory for CFS | 5/26 (19) | Not included in the COMS |
| PEM items from DePaul Symptom Questionnaire | 10/26 (38) | Not included in the COMS | |
| Symptom Burden Questionnaire for Long COVID (fatigue scale) | 6/26 (23) | Not included in the COMS | |
| Neurocognitive functioning, symptoms and conditions # | PROMIS Pediatric Cognitive Function – Short Form 7a | 9/24 (36) | Not included in the COMS |
| PedsQL Cognitive Functioning Scale# | 21/25 (84) | Included in the COMS | |
| Symptom Burden Questionnaire for Long COVID (memory, thinking and communication scale, movement scale, muscles and joints, pain scales) | 4/24 (16) | Not included in the COMS | |
| Physical functioning, symptoms and conditions# | EQ-5DY instrument# | 24/25 (96) | Included in the COMS |
| PROMIS Physical Activity | 2/25 (8) | Not included in the COMS | |
| Symptom Burden Questionnaire for Long COVID (impact on daily life scale) | 3/25 (12) | Not included in the COMS | |
| Work/occupational and study changes | Symptom Burden Questionnaire for Long COVID (impact on daily life scale) | 5/22 (23) | Not included in the COMS |
| WHODAS 2.0 Children and Youth 36-Item Version | 7/23 (30) | Not included in the COMS |
COMS: core outcome measures set; COVID: coronavirus disease 2019; POTS: postural orthostatic tachycardia syndrome; PROMIS: Patient-Reported Outcomes Measurement Information System; CDC: Centers for Disease Control and Prevention; CFS: chronic fatigue syndrome; PEM: post-exertional malaise; WHODAS: World Health Organization Disability Assessment Schedule. #: included in the COMS.