Figure 2. Participant-Cited Reasons for Declining a Genetics Visit.

The 10 most frequently cited reasons are shown in the graph (number of times cited, % of participants citing). A total of 200 reasons were mentioned among 23 categories from 152 unique participants, 21 of whom ultimately completed a visit. Age was primarily cited among participants with advanced age. “Managed” references a participant’s perception that they were being managed for the condition and/or the phenotype(s) associated with a condition. PCP indicates primary care practitioner.