Table 1.
Respondent Characteristics.
| Characteristics | Total† n = 225 | Parents* n = 197 | Survivors* n = 28 |
|---|---|---|---|
|
| |||
| Race | |||
| Black | 12 (5.3%) | 9/163 (5.5%) | 3/24 (13%) |
| White | 146 (65%) | 129/163 (79%) | 17/24 (71%) |
| Asian | 3 (1.3%) | 3/163 (1.8%) | 0/24 (0%) |
| More than one/other | 28 (12%) | 22/163 (13%) | 4/24 (17%) |
| Hispanic ethnicity | 29 (2.9%) | 26/162 (16%) | 3/22 (13%) |
| Age (yrs), mean ± SD | 31 ± 7 | ||
| Gestational age at birth | |||
| 22–24 weeks | 25 (11%) | 25/192 (13%) | 0/24 (0%) |
| 25–28 weeks | 75 (33%) | 68/192 (35%) | 7/24 (29%) |
| 29–33 weeks | 63 (28%) | 58/192 (30%) | 5/24 (21%) |
| 34–36 weeks | 20 (8.9%) | 15/192 (7.8%) | 5/24 (21%) |
| 37–42 weeks | 33 (15%) | 26/192 (14%) | 7/24 (29%) |
| Surgery | 189 (84%) | 166/192 (87%) | 23/26 (89%) |
| Laparotomy | 159 (71%) | 139/165 (84%) | 20/23 (87%) |
| Drain | 8 (3.6%) | 8/165 (4.8%) | 0/23 (0%) |
| Not sure | 21 (9.3%) | 18/165 (11%) | 3/23 (1.3%) |
Values are n (%) total survey respondents.
Values are n/N (%) of questions answered.