Table 2.
Long-Term Complications.
| Characteristics | Total† n = 225 | Parents* n = 197 | Survivors* n =28 |
|---|---|---|---|
|
| |||
| Any long-term complications | 136 (60%) | 113/157 (72%) | 23/26 (89%) |
| Types of long-term complications | |||
| Digestive | 104 (46%) | 83/197 (42%) | 21/28 (75%) |
| Short-bowel | 71 (32%) | 61/197 (31%) | 10/28 (36%) |
| Long-term enteral nutrition | 53 (24%) | 50/197 (25%) | 3/28 (11%) |
| Long-term IV nutrition | 39 (17%) | 36/197 (18%) | 5/28 (11%) |
| Respiratory | 42 (19%) | 37/197 (19%) | 5/28 (18%) |
| Gross motor | 48 (21%) | 46/197 (23%) | 2/28 (7.1%) |
| Fine motor | 43 (19%) | 41/197 (21%) | 2/28 (7.1%) |
| Cognitive | 57 (25%) | 53/197 (27%) | 4/28 (14%) |
| Other | 39 (17%) | 31/197 (16%) | 8/28 (29%) |
| Post-NICU hospital or ED visit | 96 (43%) | 84/156 (54%) | 12/26 (46%) |
| 1–2 times | 27 (12%) | 23/76 (30%) | 4/12 933%) |
| 3–5 times | 21 (9.3%) | 18/76 (24%) | 3/12 (33%) |
| 6 or more times | 40 (18%) | 35/76 (46%) | 5/12 (33%) |
| Surgery after NICU discharge | 97 (43%) | 85/152 (56%) | 12/25 (33%) |
| Anxiety or worry about body | |||
| No | 70 (31%) | 68/149 (46%) | 2/25 (8%) |
| Yes | 58 (26%) | 38/149 (26%) | 20/25 (80%) |
| Not sure | 46 (20%) | 43/149 (29%) | 3/25 (12%) |
| Impact on relationships | |||
| No | 103 (46%) | 89/151 (59%) | 14/25 (56%) |
| Yes | 37 (16%) | 26/151 (17%) | 11/25 (44%) |
| Not sure | 36 (16%) | 36/151 (24%) | 0/25 (0%) |
| Impact on quality of life of NEC patient | 88 (39%) | 73/152 (48%) | 15/25 (60%) |
†
Values are n (%) total survey respondents.
*
Values are n/N (%) of questions answered.