Table 2.

Comparison between self-reported date of diagnosis with the first appearance of PD diagnosis in the EHR

AccessPD as a next generation registry to accelerate Parkinson’s disease research
Lapse between self-reported date of diagnosis and first appearance of PD diagnosis in EHR	No. of patients, n (%)
Within 1 year	161 (83.9)
Between 1–2 years	14 (7.3)
Between 2–3 years	4 (2.1)
Between 3–4 years	5 (2.6)
Between 4–5 years	2 (1.0)
More than 5 years	6 (3.1)
Self-reported date earlier than first appearance of PD diagnosis in EHR	154 (80.2)
First appearance of PD diagnosis in EHR earlier than self-reported date of diagnosis	37 (19.3)

Patients without a coded diagnosis of PD were excluded from this analysis. To compare self-reported date of diagnosis in the baseline questionnaire with EHR record of PD diagnosis, observations and medication records of the first 200 participants were extracted. 7 participants were identified using their prescription records and had no coded diagnosis of PD in EHR. 1 participant was excluded due to their MSA-P diagnosis. The total number of participants included in the analysis was 192.