TABLE 1.
Characteristics of parents participating in PRISM‐Impact.
| Characteristic | All participating parents (N = 182) | Interviewed participants (N = 45) |
|---|---|---|
| Age, years | ||
| Mean (SD) | 41.6 (7.4) | 43.1 (7.7) |
| Range | 23–67 | 29–67 |
| Gender, No. (%) | ||
| Female | 114 (62.6) | 32 (71.1) |
| Male | 68 (37.4) | 13 (28.9) |
| Marital status, No. (%) | ||
| Never married/de facto | 3 (1.6) | 0 |
| Currently married/de facto | 158 (86.8) | 38 (84.4) |
| Separated/divorced/previous de facto | 20 (11.0) | 7 (15.6) |
| Widowed | 1 (0.5) | 0 |
| Highest level of education, No. (%) | ||
| High school | 32 (17.6) | 5 (11.1) |
| Apprenticeship | 8 (4.4) | 1 (2.2) |
| Certificate/diploma | 52 (28.6) | 15 (33.3) |
| University undergraduate | 53 (29.1) | 16 (35.6) |
| University postgraduate | 37 (20.3) | 8 (17.8) |
| Employment status, No. (%) | ||
| Employed full‐time | 82 (45.1) | 19 (42.2) |
| Employed part‐time | 39 (21.4) | 10 (22.2) |
| Employed casual | 9 (4.9) | 2 (4.4) |
| Not employed | 19 (10.3) | 7 (15.6) |
| Home duties | 32 (17.6) | 7 (15.6) |
| Missing | 1 (0.5) | 0 |
| Cultural background, No. (%) | ||
| Western/European | 140 (76.9) | 36 (80.0) |
| Other | 37 (20.3) | 8 (17.8) |
| Missing | 5 (2.7) | 1 (2.2) |
| Aboriginal or Torres Strait Islander, No. (%) | ||
| Yes | 1 (0.5) | 1 (2.2) |
| No | 180 (98.9) | 44 (97.8) |
| Missing | 1 (0.5) | 0 |
| Religion, No. (%) | ||
| No religion | 81 (44.5) | 20 (44.4) |
| Christianity | 86 (47.3) | 20 (44.4) |
| Buddhism | 2 (1.1) | 0 (0.0) |
| Islam | 5 (2.7) | 2 (4.4) |
| Hinduism | 4 (2.2) | 0 |
| Judaism | 1 (0.5) | 0 |
| Other religion | 2 (1.1) | 2 (4.4) |
| Missing | 1 (0.5) | 1 (2.2) |
| Perceived genetics knowledge a | ||
| Below average | 48 (26.4) | 6 (13.3) |
| About average | 104 (57.1) | 32 (71.1) |
| Better than average | 28 (15.4) | 7 (15.6) |
| Missing | 2 (1.1) | 0 |
| Past genetic/genomic testing in immediate family b | ||
| Yes | 17 (9.3) | 4 (8.9) |
| No | 149 (81.9) | 38 (84.4) |
| Unsure | 15 (8.2) | 3 (6.7) |
| Missing | 1 (0.5) | 0 |
| Family history of cancer, No. (%) c | ||
| Yes | 26 (14.3) | 7 (15.6) |
| No | 59 (32.4) | 17 (37.8) |
| Not assessed/recorded | 97 (53.3) | 21 (46.7) |
| Time from consent and T0, weeks | ||
| Mean (SD) | 7.2 (4.6) | |
| Range | 1.3–29.7 | |
| Time from return of results and T1, weeks | ||
| Mean (SD) | 14.0 (9.8) | |
| Range | 0.7–45.8 | |
Abbreviations: PRISM, Precision Medicine for Children with Cancer; PRISM‐Impact, the psychosocial substudy running alongside the PRISM study; T, time.
a
Self‐reported at T0.
b
Other than the PRISM study; self‐reported at T0.
c
Information obtained during a clinical consultation. “Not assessed/recorded” includes missing data and cases where the clinician recorded that they did not assess the family history of cancer.