Table 1.
Participant demographics for ALD interviews
| Interviews completed, n | 17 |
| Sex, n (%) | |
| Male | 15 (88.2) |
| Female | 2 (11.8) |
| Race, n (%) | |
| White | 16 (94.1) |
| Omitted | 1 (5.9) |
| Hispanic or Latino, n (%) | |
| Yes | 1 (5.9) |
| No | 16 (94.1) |
| Age in years | |
| Mean ± 1 SD | 48 ± 13 |
| Range | 23–72 |
| Age at diagnosis in years | |
| Mean ± 1 SD | 30 ± 17 |
| Range | 2 to 62 |
| Ambulatory status, n (%) | |
| Fully ambulatory, no assistance | 3 (17.6) |
| Ambulatory with canes/assistance | 9 (53.0) |
| Non-ambulatory/wheelchair | 5 (29.4) |
| U.S. states represented, n | 8 |
Multiple-choice options that were not selected by any participant have been omitted for conciseness
Percents have been normalized for missing responses