Table 4.
Caregiver and close relative demographics
| Caregiver relation, n (%)b,c | n = 700a |
| Parent | 684 (98) |
| Sibling | 2 (0.3) |
| Grandparent | 7 (1) |
| Legal guardian | 18 (3) |
| Prefer not to say | 0 (0) |
| Other | 2 (0.3) |
| Number of care recipients with OI in household, n (%)d,c | |
| Households with 1 care recipient | 632 (90) |
| Households with 2 care recipients | 56 (8) |
| Households with 3 care recipients | 12 (2) |
| Number of care recipients without OI in household, n (%)d | |
| Households with 0 siblings | 302 (43) |
| Households with 1 sibling | 284 (41) |
| Households with 2 siblings | 91 (13) |
| Households with 3 siblings | 18 (3) |
| Households with 4 siblings | 5 (0.7) |
| Close relative relation, n (%)e | n=116 |
| Partner of a person with OI | 33 (28) |
| Sibling of a person with OI | 23 (20) |
| Friend of a person with OI | 17 (15) |
| Grandparent of a person with OI | 14 (12) |
| Aunt of a person with OI | 8 (7) |
| Child of a person with OI | 4 (3) |
| Friend of a caregiver for a child with OI | 3 (3) |
| Support teacher of a person with OI | 3 (3) |
| Doctor of a person with OI | 2 (2) |
| Grandchild of a person with OI | 2 (2) |
| Great aunt of a person with OI | 2 (2) |
| Brother-in-law of a person with OI | 1 (1) |
| Caregiver of a person with OI | 1 (1) |
| Godmother | 1 (1) |
| Mother of a person with OI | 1 (1) |
| Mother of a deceased child with OI | 1 (1) |
OI, osteogenesis imperfecta
aIncludes caregiver adults with OI and caregivers without OI. Of 710 caregivers 700 provided information on care recipients with OI; b14 respondents indicated > 1 relation to a care recipient; cQuestion 24 “What is your relationship to the child/children with OI in your care?”. Respondents could pick more than one option including: parent, sibling, grandparent, legal guardian, prefer not to say, other and provide free text. dQuestions 22 and 23 included a drop down with numerals from 1 to 3 and 0 to 4 respectively. eQuestion 396 “Please indicate which of the following best describes your relationship to the person with OI”. Answer options included: child of a person with OI, sibling of a person with OI, grandparent of a person with OI, partner of a person with OI, other relationship to a person with OI (please specify below)