Table 2.

Sources identified in IgAN literature review

Study name, reference	Study purpose	Study setting	Population
Feldman (2020)	To inform the FDA and other stakeholders (e.g., drug developers) on experiences and perspectives of patients with IgAN regarding the symptoms and burdens of IgAN and impact on their daily life	USA	Adult and pediatric
IgA Nephropathy Foundation. Faces of IgAN	To share the stories and experiences of those living with IgAN	USA	Adult and pediatric
NephCure Kidney International. Adult IgAN Nephropathy Patient Stories	To share the stories and experiences of those living with IgAN	USA	Adult
Vasilica (2021)	To analyze social media interactions to identify unmet education and information needs of patients with IgAN	UK	Not stated
Zaour (2020)	To understand the patient journey, disease perceptions, and burden of disease from the patients’ perspective	North America and Europe	Adult

FDA Food and Drug Administration, IgAN immunoglobulin A nephropathy