Table 2.
Socio-demographic and quality of life score of patients and their family members who completed baseline and follow-up questionnaires for responsiveness and MIC studies
| Characteristic | Number (%) or Mean (SD) | Number (%) or Mean (SD) | |
|---|---|---|---|
| Responsiveness (n = 83) | MIC (n = 100) | ||
| Patient | |||
| Age | Mean age | 50.99 (18.71) | 44.12 (22.94) |
| Range | 18–89 | 1–89 | |
| Gender | Male | 40 (48.2) | 48 (48) |
| Female | 43 (51.8) | 52 (52) | |
| Ethnicity | White | 74 (89.2) | 81 (81) |
| Asian/Asian British | 6 (7.2) | 15 (15) | |
| Black/African/Caribbean/Black British | 2 (2.4) | 2 (2) | |
| Prefer not to say | 1 (1.2) | 2 (2) | |
| Occupation | In paid work | 44 (53.0) | 44 (44) |
| Unemployed | 5 (6.0) | 5 (5) | |
| Homemaker | 6 (7.2) | 6 (6) | |
| Retired | 25 (30.1) | 25 (25) | |
| Rather not say | 3 (3.6) | 3 (3) | |
| NA | 17a (17) | ||
| Heath condition | Acne | 5 (6.0) | 11 (11) |
| Eczema | 6 (7.2) | 14 (14) | |
| Psoriasis | 10 (12.0) | 13 (12) | |
| Urticaria | 1 (1.2) | 1 (1) | |
| Rosacea | 1 (1.2) | 1 (1) | |
| Hidradenitis Suppurativa | 10 (12.0) | 10 (10) | |
| Rheumatoid Arthritis | 10 (12.0) | 10 (10) | |
| Seronegative Arthritis | 1 (1.2) | 1 (1) | |
| Psoriatic Arthritis | 2 (2.4) | 2 (2) | |
| Ankylosing Spondylitis | 1 (1.2) | 1 (1) | |
| Enteropathic Arthritis | 1 (1.2) | 1 (1) | |
| Myeloma | 5 (6.0) | 5 (5) | |
| Type 1 Diabetes | 10 (12.0) | 10 (10) | |
| Type 2 Diabetes | 19 (22.9) | 19 (19) | |
| Ulcerative Colitis | 1 (1.2) | 1 (1) | |
| EQ-5D-3 L | Baseline | 0.738 (0.22) | NA |
| Follow-up | 0.797 (0.18) | NA | |
| Change score | −0.059** (0.14) | NA | |
| EQ-VAS | Baseline | 59.55 (22.81) | NA |
| Follow-up | 68.75 (19.83) | NA | |
| Change score | −9.19 (19.43) | NA | |
| Disease severity (GS scale) | Baseline | 5.24 (2.49) | NA |
| Follow-up | 4.28 (2.45) | NA | |
| Change score | 0.964 (3.11) | NA | |
| Family member/partner | |||
| Age | Mean age | 50.75 (15.48) | 49.25 (14.69) |
| Range | 18–83 | 18–83 | |
| Gender | Male | 37 (44.6) | 42 (42) |
| Female | 46 (55.4) | 58 (58) | |
| Ethnicity | White | 76 (91.6) | 84 (84) |
| Asian/Asian British | 4 (4.8) | 13 (13) | |
| Black/African/Caribbean/Black British | 2 (2.4) | 2 (2) | |
| Prefer not to say | 1 (1.2) | 1 (1) | |
| Occupation | In paid work | 49 (59.0) | 64 (64) |
| Unemployed | 1 (1.2) | 1 (1) | |
| Homemaker | 5 (6.0) | 5 (5) | |
| Education/training | 1 (1.2) | 1 (1) | |
| Retired | 24 (28.9) | 24 (24) | |
| Rather not say | 3 (3.6) | 5 (5) | |
| Relationship to patient | Spouse/Partner | 67 (80.5) | 67 (67) |
| Parent | 6 (7.2) | 25 (25) | |
| Son/Daughter | 8 (9.6) | 6 (6.1) | |
| Brother/Sister | 1 (1.2) | 1 (1.0) | |
| Other | 1 (1.2) | 1 (1.0) | |
| FROM-16 scores | Baseline FROM-16 | 9.54 (6.83) | 9.52 (6.57) |
| Follow-up FROM-16 | 8.11 (6.93) | 8.55 (7.38) | |
| Change score | 1.43* (5.01) | 0.970 (5.41)** | |
| FROM correlation to GRC | Pearson’s correlation | 0.39** | 0.418 ** |
** Correlation is significant at < 0.001 level (2-tailed); *Correlation is significant at < 0.05 level (2-tailed); aPaediatric patients, details about occupation not applicable.
FROM-16 Family Reported Outcome Measure-16 items; GRC Global Rating of Change scale; EQ-5D-3L Euroqol Five Dimension -three level; GS Global severity scale. EQ-5D and EQ-VAS improvement/deterioration runs in the opposite direction to FROM-16. A higher score of FROM-16 means deterioration while a higher score on EQ-5D-3L and EQ-VAS means improvement and vice versa