Table 5.

Patient Perceptions and Utilization of PGHD.

Article	Patient Perceptions	PGHD Utilization	Key Findings
Zhu et al. [68]	Positive: gain insights, participate in care, Negative: burdensome to share in visits	Self-management, Share with clinicians to inform treatment decisions	Patients motivated to collect PGHD for self-awareness, self-management, track effectiveness of treatments, Want to use PGHD to alter treatment plans and medications, Perceive sharing PGHD as burdensome due to time constraints, Want guidance from clinicians on relevant data to collect
Lavallee et al. [7]	Positive if providers find it useful/relevant, Negative if providers not receptive	Share targeted PGHD to inform treatment decisions, Discontinue sharing if provider not receptive	Selective in sharing PGHD based on perceived provider interest and relevance, Consider visit time constraints when deciding what PGHD to share, Less likely to continue sharing if providers don’t find it useful
Burns et al. [69]	Positive: engaging, empowering	Self-monitoring health conditions, Share with providers to improve communication	Collecting PGHD engages patients, enhances doctor-patient relationships, Allows patients to feel empowered, reassured, in control, Provides visual evidence to accompany descriptions of health issues
Adler-Milstei et al. [3]	Positive: enhances understanding, assist providers, Negative: privacy concerns, lack of communication on use	Achieve health goals, Diagnosis and care management	Aligns with patient preferences except 3rd party biometric data (privacy concerns), Motivated to achieve health goals, enhance understanding, assist providers, Concerns about manual effort required, lack of communication on value and use of data, Stress integrating PGHD into interactions with providers
Kim et al. [70]	Mixed: benefits but concerns on privacy, autonomy	Inform clinical care (but potential for manipulation)	Enhances transparency but also raises patient concerns about privacy, autonomy, Questions around reliability of data, need for education on collection and use, Mismatch between available technology and actual patient/provider needs
Smith et al. [71]	Positive: altruistic motivation, Expect privacy, reciprocity	Share with cancer registries to aid research	Motivated to share to aid other patients (altruistic), Want confidentiality, reciprocal information on treatments, side effects etc., Preferred methods: mail, phone, online surveys, patient portals