Highlights
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Written recovery stories reduced social SUD stigma for non-rural participants.
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Anonymous written recovery stories reduced social stigma for rural participants.
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Stigma intervention effectiveness differs across rurality.
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Social SUD stigma among rural individuals may be exceedingly difficult to change.
Keywords: Contact interventions, Education interventions, Recovery housing, Stigma, Substance use disorder
Abstract
Background
Individuals with substance use disorder (SUD) and recovery support services often face significant social stigma, especially in rural areas. One method of addressing stigma is through education and personal recovery stories. It is unclear if such messages will work similarly across rural and non-rural areas.
Methods
We conduct an exploratory analysis of data from a national randomized controlled trial (N = 2,721) to determine if there are differences in the effectiveness of messages at reducing stigma across rurality. Specifically, we test four interventions to reduce stigma: education about the effectiveness of recovery housing and three versions of a personal recovery story that varied social distance and delivery medium (identified written story, anonymous written story, and video).
Results
We find that messages may not have the same effect across rurality, with non-rural participants in the identified and anonymous written recovery story groups having lower stigma scores and only rural participants exposed to the anonymous written story having lower stigma scores compared to their counterparts in the control group. Further, non-rural participants exposed to both written story treatments had higher positive feelings towards those in recovery compared to the control group, but only rural participants in the anonymous written story group had higher positive feelings compared to the control group.
Conclusion
Our results suggest that messages may have different effects on stigma across rurality and that rural participants’ beliefs may be particularly hard to change. Future research should examine what types of stigma reduction interventions are most effective in rural areas.
1. Introduction
Substance use disorder (SUD) continues to be a top concern in rural America as the rate of SUD incidence and associated drug overdose mortality in rural areas continues to increase (Bolin et al., 2015, Hedegaard, 2021). Compounding the issue of SUD, most rural areas have fewer recovery support services and reduced access to quality care than their urban counterparts (Pullen & Oser, 2014). Due to this lack of resources, expansions of recovery services like recovery housing (RH), a housing model that relies on peer support and a sober living environment to help individuals maintain their recovery (HUD, 2015), is essential. RH has been found to improve numerous SUD outcomes and has been identified as a particularly important resource in rural communities as it has a lower cost of care than traditional treatment models and is highly effective (Ashworth et al., 2022, French and McGeary, 1997, Mericle et al., 2022, Polcin et al., 2010).
A key barrier facing the expansion of RH in rural areas is community stigma surrounding SUD and SUD treatment which has been found to be a significant barrier to treatment-seeking and success in both rural and non-rural areas (Anvari et al., 2022, Burgess et al., 2021, Crapanzano et al., 2018). Social stigma occurs at the community level when a particular behavior or characteristic is perceived as wrong and used to distinguish between members of society. Although RH has been found to be an important resource in the SUD continuum of care, efforts to establish RH are often hindered by community stigma and “not in my backyard” (NIMBY) beliefs (B, 2017, Rios, 2019). Addressing stigma held towards people with SUD can aid in the expansion of RH by reducing NIMBY beliefs and increasing support and awareness of SUD recovery support services.
Interventions to reduce stigma towards those with SUD have been tested, but it is unclear if these interventions work in rural areas as no studies to our knowledge have examined how intervention effectiveness may differ across rural and non-rural individuals. Among studies that have examined interventions to reduce stigma among national samples, narratives of individuals with SUD have been identified as most effective when they humanize the experience of SUD and incorporate messages of hope and recovery (Judd et al., 2021, McGinty et al., 2018). Education interventions have also been tested to reduce SUD stigma among national samples as well but have been identified as potentially less effective than personal narratives (Kelly et al., 2021, Kennedy-Hendricks et al., 2022, Luty et al., 2007, McGinty et al., 2018). Interventions to reduce stigma may be more or less effective in rural areas compared to urban areas as rural individuals often differ in key demographics such as age, political leaning, and income, may have different exposure to SUD, and have been found to be less responsive to public health information (Hedegaard, 2021, Mitchell, 2018, Thunström et al., 2021). In this study, we aim to examine whether messages that aim to reduce stigma including a message about the effectiveness of RH and three versions of a personal recovery story that varied social distance and delivery medium (identified written story, anonymous written story, and video) work similarly across rural and non-rural participants.
2. Methods
We analyzed data gathered from a survey experiment in which participants were randomly exposed to one of five information treatments and then asked a series of questions to measure social SUD stigma, RH support, and SUD beliefs. The survey experiment was approved as an exempt protocol by the Western Copernicus Institutional Review Board and pre-registered in the AEA RCT registry (RCT ID: AEARCTR-0008758).
2.1. Sample
Survey participants were recruited by Qualtrics via inviting a randomly selected sample of qualifying participants from their partners’ traditional, actively managed market research panels. Participants were paid the standard compensation from the panel host for completing a survey (Qualtrics, 2023), which may vary across host panels in type and size, depending on how participants were recruited to the panel, personal preferences, and history on the panel. Those who did not spend long enough taking the survey such that it was implausible they were fully exposed to the interventions and those that failed attention checks included in the survey were removed from the final sample (N = 351). After removing those who failed attention checks, the final sample consisted of 2,721 U.S. adults from across the country that was quota representative of the U.S. population based on income, education, and race. The final sample consisted of 670 (25 %) rural and 2,051 (75 %) non-rural participants (Table 1). Data was collected between January 26, 2022, and February 15, 2022.
Table 1.
Participant Characteristics | Percent |
|
---|---|---|
Rural (N = 670) | Non-Rural (N = 2,051) | |
Gender | ||
Female** | 66.1 | 60.3 |
Male** | 33.9 | 39.7 |
Age | ||
18–34*** | 20.7 | 28.6 |
35–54 | 34.2 | 31.0 |
55+* | 45.1 | 40.4 |
Race | ||
White*** | 93.0 | 83.8 |
Black/African American*** | 4.0 | 9.3 |
Indigenous | 4.0 | 2.6 |
Asian*** | 1.8 | 4.6 |
Native Hawaiian/Pacific Islander | 1.2 | 0.6 |
Other* | 1.3 | 3.0 |
Experience with SUD | ||
Familiar with RH | 70.9 | 73.0 |
Frequently encounter SUD** | 57.0 | 50.4 |
Friend with a SUD | 49.5 | 49.7 |
Family member with a SUD** | 56.1 | 14.8 |
Have a SUD | 12.5 | 12.9 |
Negatively impacted by SUD | 38.8 | 36.1 |
Know someone who went to SUD treatment* | 59.2 | 65.0 |
Have gone to treatment themselves** | 65.5 | 80.4 |
Political Leaning | ||
Liberal*** | 19.1 | 29.5 |
Moderate | 44.3 | 40.2 |
Conservative** | 36.6 | 30.3 |
Employment Profession | ||
Criminal justice professional | 1.5 | 2.4 |
Medical professional | 4.5 | 5.7 |
Therapist/counselor | 1.9 | 3.0 |
Income and Education | ||
Low income*** | 49.0 | 32.3 |
High income*** | 3.3 | 9.5 |
Middle income*** | 47.8 | 58.2 |
College graduate*** | 44.5 | 45.0 |
*p < 0.05, **p < 0.01, ***p < 0.001.
2.2. Survey procedure
All participants were presented with a series of demographics questions including whether they lived in a rural, urban, or suburban area, and provided a brief description of RH and SUD. Participants were then randomized into one of five treatment groups. The control treatment included no additional information. The data treatment presented participants with an infographic describing the effectiveness of the Recovery Kentucky program at improving various treatment outcomes like substance use, mental health, and employment (Cole et al., 2021). The anonymous or identified written story treatments presented participants with a written story of an individual in recovery who had successfully completed the Recovery Kentucky program that was either anonymous or identified with the name of the storyteller. Both stories were presented identically, with the exception of the identity (name) of the storyteller being revealed in the identified written story, while the person telling the story remained anonymous (and was referred to as a “person in recovery”) in the anonymous treatment. Finally, the video treatment presented participants with a 3-minute video of the same individual from the written story treatments telling their story. The story intervention, presented via writing or video, highlighted an individual’s recovery, including their history with addiction, how recovery housing helped them, and how they help others in their recovery. The storyteller was a middle-aged, white man from Kentucky.
After exposure to the treatments, all participants were asked to answer questions from two validated mental health stigma scales that we adapted to reflect beliefs about individuals with SUD and SUD treatment including RH. No assessment of stigma was done prior to exposure to the treatments. The first stigma scale was an adaptation of the Community Attitudes towards Mental Illness (CAMI) scale which measures social SUD stigma, including stigmatizing beliefs towards individuals with SUD, towards community treatment of SUD, and towards RH specifically (Taylor & Dear, 1981). The second stigma scale was the Affect Scale which was adapted to measure participant’s perceived emotional response if they were to encounter an individual in recovery from a SUD (Brown, 2011, Penn et al., 1994). Both the Affect Scale and CAMI scale were coded such that higher scores represent less stigma or more positive feelings felt. Both adapted stigma scales exhibit strong internal consistency as evidenced by a Cronbach alpha coefficient greater than 0.95.
Participants were also asked questions to determine their general beliefs about and experience with SUD and whether they would support RH being built in their neighborhood. Finally, participants were asked a series of demographic questions including gender, race, income, political leaning, and employment profession. The full methods related to the survey instrument can be found in (Ashworth et al., 2023).
2.3. Analysis
Because our randomization was successful in equally distributing participant characteristics across treatment groups (Imbens & Rubin, 2015), we can identify treatment effects by conducting tests of equality of means without including other control variables. To determine differences in beliefs and support across rural and non-rural participants, we compared CAMI scores, Affect scale scores, and the share of participants who stated they would support RH across self-reported rural and non-rural participants that were randomized into the control treatment. To determine treatment effects for rural participants, we compared average CAMI scores and Affect Scale scores of rural participants in each treatment group to that of rural participants in the control group. To determine treatment effects for nonrural participants, we compared average CAMI scores and Affect Scale scores of non-rural participants in each treatment group to that of non-rural participants in the control group. We use two-sided t-tests to test for differences in CAMI and Affect scale scores and Pearson Chi-Squared tests to test for differences in the share of participants who agreed they support RH. We set our significance level (alpha) at 0.05. All analyses were completed using STATA SE v.18.
3. Results
We found that there is no significant difference in levels of stigma as measured by the CAMI scale (t = -0.398, p = 0.691) or the Affect scale (t = -0.432, p = 0.666) between rural and non-rural participants. Rural and non-rural participants also did not differ significantly in their stated support for RH with 51 % of non-rural participants and 56 % of rural participants agreeing that they would be fine with RH in their neighborhood (χ2 = 1.273, p = 0.259).
Next, we examine heterogenous treatment effects across rurality (Table 2). Non-rural participants in the identified (t = -1.981, p = 0.048) and anonymous written story (t = -2.326, p = 0.020) treatment groups had significantly lower CAMI scale scores as compared to non-rural participants in the control treatment. However, non-rural participants in the data treatment (t = -0.471, p = 0.638) and the video treatment (t = -1.082, p = 0.280) had similar CAMI scale scores as non-rural participants in the control group. Non-rural participants in the identified and anonymous written story treatments (t = -2.097 and t = -3.133, p = 0.036 and p = 0.002) had significantly higher positive feelings towards individuals in recovery as measured by Affect scale scores compared to non-rural participants in the control treatment. However, non-rural participants in the data treatment (t = -0.174, p = 0.862) had similar Affect scale scores as non-rural participants in the control treatment.
Table 2.
Non-Rural | ||||||
---|---|---|---|---|---|---|
Outcome Measure |
Mean (Standard Deviation) |
|||||
Control | Data | Identified | Anonymous | Video | ||
Community Attitudes towards Mental Illness (CAMI) | Community treatment | 34.12 (8.21) |
34.51 (7.63) |
35.32* (7.94) |
35.59* (8.40) |
34.82 (8.48) |
Benevolence | 36.10 (6.50) |
36.04 (6.22) |
36.90 (6.15) |
36.74 (6.24) |
36.33 (6.43) |
|
Authoritarianism | 34.36 (5.37) |
34.50 (5.03) |
34.71 (5.18) |
34.85 (5.05) |
34.59 (5.25) |
|
Social restrictiveness | 36.81 (6.64) |
37.04 (6.50) |
37.58 (6.26) |
38.01** (6.48) |
37.44 (6.67) |
|
Total score | 141.39 (23.51) |
142.10 (22.55) |
144.51* (22.09) |
145.20* (23.47) |
143.19 (24.05) |
|
Affect scale | Total score | 50.33 (11.45) |
50.46 (11.38) |
51.94* (10.82) |
52.78** (10.90) |
51.57 (11.29) |
Rural | ||||||
Outcome Measure | Mean (Standard Deviation) | |||||
Control | Data | Identified | Anonymous | Video | ||
Community Attitudes towards Mental Illness (CAMI) | Community treatment | 34.77 (7.97) |
34.44 (7.95) |
35.58 (7.58) |
36.85* (7.93) |
35.15 (7.95) |
Benevolence | 35.85 (7.34) |
35.74 (6.24) |
36.31 (5.71) |
37.13 (6.60) |
35.88 (6.20) |
|
Authoritarianism | 34.74 (5.19) |
33.93 (5.06) |
34.03 (4.89) |
35.65 (4.75) |
34.26 (4.94) |
|
Social restrictiveness | 36.95 (6.40) |
36.41 (6.49) |
37.65 (6.45) |
39.07** (6.64) |
37.44 (6.15) |
|
Total score | 142.31 (24.52) |
140.53 (23.25) |
143.56 (21.71) |
148.69* (23.11) |
142.74 (22.47) |
|
Affect scale | Total score | 49.85 (11.48) |
51.19 (11.26) |
51.19 (10.85) |
53.52** (10.76) |
51.43 (10.09) |
*p < 0.05, **p < 0.01, ***p < 0.001.
Our treatments had limited effectiveness among rural participants as only rural participants in the anonymous written story group had lower CAMI scale scores (t = -2.174, p = 0.031) and Affect scale scores (t = -2.677, p = 0.008) compared to rural participants in the control group. Rural participants in the data treatment group, the video treatment, or the identified written story treatment group had similar levels of stigma as measured by the CAMI and Affect scales as rural participants in the control group.
4. Discussion
In our study, we find that levels of community stigma across rural and non-rural participants are similar. Further, we find that stigma reduction interventions may not have the same effect across rurality as non-rural participants in the identified and anonymous written story treatment groups had lower stigma compared to non-rural participants in the control group but only rural participants in the anonymous written story treatment group had lower stigma compared to rural participants in the control group. This suggests that stigma intervention effectiveness differs across rurality, with stigma among rural populations being exceedingly difficult to change. This finding is consistent with other public health messaging studies that find those in rural areas may be especially difficult to influence with information (Thunström et al., 2021).
Our study has several limitations that are important to consider. First, our analysis should be regarded as exploratory, meaning we are not explicitly testing hypotheses but rather generating future questions to be answered (Varadhan & Seeger, 2013). Further, we only examine the effect of brief interventions and their short-term effects on SUD stigma. Additionally, we rely on self-reported measures of rurality which can differ from other objective measures of rurality (Castle & Tak, 2021). Finally, the goal of our study was to examine social stigma towards SUD and RH in general, as such we did not disentangle stigma towards different types of SUDs or stigma towards individuals with SUD by varying race and/or gender.
Future research should explore how different sociodemographic characteristics and geographic location of the storyteller influence the effectiveness of the story at reducing stigma and changing behavior. Other studies have found that stigma towards individuals with SUD vary based on the age, gender, and socioeconomic status of the person with a SUD (Kennedy-Hendricks et al., 2016, Sattler et al., 2017). Additionally, the likeness between participants and the storyteller may impact message effectiveness. As the source of messaging has been found to be important in other public health messaging campaigns, especially in rural areas, future research should examine if data being presented from trusted messengers could influence the effectiveness of educational interventions, as well as the delivery method (Freed et al., 2011, Okuhara et al., 2020).
Funding Sources
This article was partially supported by the U.S. Department of Health and Human Services, Health Resources and Services Administration under cooperative agreement number UD9RH33631. The views expressed in this publication are solely the opinions of the authors and do not necessarily reflect the official policies of the U.S. Department of Health and Human Services, or the Health Resources and Services Administration nor does mention of the department or agency names imply endorsement by the U.S. Government.
CRediT authorship contribution statement
Madison Ashworth: Writing – review & editing, Writing – original draft, Visualization, Project administration, Methodology, Investigation, Formal analysis, Data curation, Conceptualization. Linda Thunström: Writing – review & editing, Supervision, Methodology, Conceptualization. Grace L. Clancy: Writing – review & editing, Conceptualization. Robin A. Thompson: Writing – review & editing, Supervision, Conceptualization. David Johnson: Writing – review & editing, Supervision, Project administration, Conceptualization. Ernest Fletcher: Writing – review & editing, Supervision, Project administration, Funding acquisition, Conceptualization.
Declaration of competing interest
The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
Acknowledgements
We want to thank Fletcher Group leadership and outreach and engagement specialists for their continued support of research efforts and recovery housing across the U.S. Specifically, we would like to thank Erica Walker, Janice Fulkerson, and Jennifer White for feedback on the study and Jade Hampton for sharing his recovery story.
Data availability
Data will be made available on request.
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Associated Data
This section collects any data citations, data availability statements, or supplementary materials included in this article.
Data Availability Statement
Data will be made available on request.