REACH |
Representativeness of participants recruited to parent research study compared to the general population |
Demographic information Comparison of public and private |
EFFECTIVENESS |
Lymphedema progression rates |
Review study audit records |
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Can routine and regularly planned monitoring assessment appointments be achieved? |
Monitoring assessments completed |
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Hospital staff perception on the efficacy of early intervention |
Discussions with members of breast cancer multidisciplinary teams and organisational leaders |
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Impact on quality of life |
LSID-A and FACT-B questionnaire |
ADOPTION |
Factors contributing to the integration and barriers preventing implementation of the PSM within the public and private health systems |
Discussions with organisational leaders identifying concerns prior to, during and post parent research study |
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Examining hospitals who did and did not integrate the PSM |
Assessing public and private uptake |
IMPLEMENTATION |
How, by whom and when was the PSM implemented. |
Education of clinical staff, planning and monitoring and referral flow |
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How was the study modified over time to facilitate implementation |
Observations during implementation to address barriers in real time |
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Educating patients to become active participants in their monitoring and early intervention |
Participants contacting research staff due to swelling concerns |
MAINTENANCE |
Participant adherence/retention over 3year study time |
Research study assessments completed and missed |
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Perceptions of maintaining a PSM |
Discussions with multidisciplinary team members |